Howard Jackson's courageous battle with Leukemia

January 30, 2006
 
 
Thank you for all your calls of concern for Howard. He is still fighting like a champ and 
focused on doing what he must to recover from the pneumonia. He has been unable to 
answer any of your calls since he does a lot of sleeping while recovering. The almost 
daily blood infusions are critical to his survival, and the premeds just knock Howard out 
for 4 or 5 hours. It does not leave many hours for him to accomplish much. That time 
is spent on showering, visiting with the doctors, doing therapy on his right arm (which 
has severe arthritis) and trying to get in a quick walk when it is possible and he is strong 
enough.
 
As of this weekend Dr. Forman reports the pneumonia has not worsened as of the last 
x-rays. In terms of coughing, breathing and pain to the infected area, he is doing much 
better. But in pictures, it has not diminished. The fevers still come at night and so the 
infection in his lung has not been knocked out yet. I have been informed this type of 
fungal pneumonia could take months to clear up.
 
It is possible that he suffered a hairline fracture to his upper chest plate when he fell in 
the hospital earlier this month. It has not shown on any of the x-rays and scans as of 
yet, but the swelling is still evident and a constant source of pain to Howard. That injury 
has caused his throat and neck muscles to stiffen and adds to his difficulty in speaking 
also. The treatment of this would fall under the same routine he is already doing, so to 
do a MRI now would only add to his discomfort. Warm packs and a neck support pillow 
are the options I have come up with that seem to help ease the pain a bit. Also helpful 
is the Vicodin that has been used to loosen him up before doing physical therapy on 
his shoulder.
 
He is aware of all the support and love from his friends and family and wants you to 
know he appreciates his friendships with each of you. We are still looking forward to 
returning to the village once the fevers and pneumonia are under control as Dr. Forman 
has indicated. At that point he hopes to be better able to communicate with you once 
again. He will still suffer from the fatigue for some time, but that is all part of the 
process. 
 
In the meantime, the leukemia cells do not seem to be affected too much by the 
Vidaza. His counts are still in a stable zone, but he may have to supplement with the 
Hydroxyurea again until the next Vidaza cycle begins if necessary. The blasts did not 
seem to completely leave his blood during this last cycle. Perhaps it is due to his 
weakened system with the lung infection and other problems he has been experiencing 
recently. Or it may be that it is just not a strong enough chemotherapy to knock out the 
aggressive cells. At this point his white blood cells are at 4.6, which is in the healthy 
zone, but they are rising daily along with the blast cells. Dr Forman is also keeping up 
with this daily.
 
Please feel free to email your messages to Howard, I will read them to him and let him 
know you are thinking of him. Sorry that we are not more able to answer your calls, but 
this is just a very demanding time for him and me as well. Howard has so many friends 
that want him to know that he is loved and being lifted in prayer daily. The hospital 
phone tends to wake him up and he is not able to answer it. Your emails will be 
responded to when time allows, but your concern and encouragement are always 
appreciated and passed forward.
 
Your prayers do make a difference, so please keep them going. The Good Lord will 
surely hear and respond to those prayers with so many calling out to Him. Howard is 
quietly enduring and allowing the processes to work within him. He is resting in this 
situation and mentally moving confidently into a healthier tomorrow. God is in control 
and he is at peace with that. 
 
Dr. Forman has not allowed any herbs, vitamins or homeopathic remedies in the past. 
It is unknown what the metabolic interactions could be with the medications he is on 
here. I am however going to send him a list of products that have been brought to our 
attention by many of you. I have always been a strong believer in natural medicines as 
a verifiable course of healing. I have to receive Dr. Forman’s feedback and okay 
before Howard will take anything not on the Doctor’s acceptable list. I would like to 
thank you for your deep concern for Howard that has resulted in your advising me of 
possible solutions for healing and recovery from this stubborn and aggressive 
leukemia blood disease.  
Sharon

January 16, 2006
 
 
 
Two thousand and five has come to a close, a new year is already upon us and we 
have received many calls of concern for Howard’s condition. Since the last posting in 
November we have remained busy with lab testing, doctor appointments, holiday 
celebrations with family and all that come with Christmas traditions. This update has 
been longer than usual in posting due to all the activity here, so it may be a bit more 
detailed as a result. 
Howard’s mouth ulcers caused by some GVHD as well as possible side effects from 
the Mylotarg chemotherapy have finally subsided. Those sores in his mouth and throat 
brought about a change in diet that required blending of all his foods so he could 
swallow with the least amount of pain. His weight has dropped to his boxing fighting 
weight of 146 as a result of all the mouth and intestinal upsets. 
Getting enough nutritionally balanced foods into Howard is a real challenge. He has lost 
a lot of weight with all the changes. I began adding a protein powder supplement, 
initially purchased to help me slim down, to his Boost Plus supplements with bananas 
and other fruits to bulk up his caloric intake. Our thanks to Howard Jr. and a good 
friend in Texas , Troy Dorsey for the additional protein supplements gifted to Howard 
to help rebuild his weight. Getting to the store to pick up items such as these has 
become a challenge without a vehicle.
 
 Just before Thanksgiving we enjoyed a surprise visit from the Norris family. After 
visiting with Chuck and Gena in the hospital room we showed them around the new 
hospital and also the beautiful grounds here. Joining them on this trip from Texas was 
Kim and Kevin Cass. It was a very pleasant reunion to be able to sit and visit with 
everyone again.
 
Howard spent Thanksgiving Day with his oldest son Howard Jr., while I spent it with my 
youngest daughter, Sarah, my two nephews and their mother, whom I had not seen in 
many years. It meant a great deal to me to be able to be with them all again. The day 
after Thanksgiving, I joined Howard at Howard Jr.’s home for the rest of the holiday 
weekend. Amber, Howard’s daughter, was able to spend the long weekend with her 
dad and the rest of the family, which just made Howard’s weekend.Due to his condition, 
he is not able to be around anyone with a cold and Amber has suffered quite a few 
lately, so it was a real treat to have her around again. 
 
During the weeks before Christmas, we were blessed to be able to take a quick trip to 
the Crystal Cathedral to see the annual “Glory of Christmas” presentation. Howard and 
I were both very impressed with the production and we recommend it to all who have 
not seen it. The story of the birth of Jesus is presented with all the real life settings. 
Angels flying overhead added a sense of realism to the presentation. Our friends’ Pam 
and Steve Gooderham picked us up and drove us to Garden Grove to enjoy the 
evening on them. We returned to the village immediately afterwards to more rest and 
recuperation.             
The morning of Christmas Eve day was spent in the clinic where I requested Howard 
receive the platelets a little early, as he would be doing a lot of moving around and be 
over an hour away from the hospital if any problems occurred. Christmas Eve and 
Christmas Day were also spent at Howard Jr.’s home. Jeremy, Howard’s youngest son, 
and his girlfriend, Jade, joined us making it a special evening for all. Much of this time 
Howard was taking “power naps” as a result of the effects of the medications and his 
weakened condition. But, he did what he wanted to do most, spend Christmas day with 
the family. Thankfully we had no problems and he returned to the village the day after 
Christmas to receive a much needed transfusion of blood.                      
The Hydroxyurea (chemo type medication) Howard has been on since the last Mylotarg 
therapy has been able to keep the leukemia cells under control while waiting to start the 
next therapy. The white counts drop and rise with the amount of the Hydroxyurea he 
takes. Finding the right balance is the tricky part. He has developed a cough that 
causes him pain in his right chest area. X-rays were taken and nothing showed up to 
indicate what may be causing this pain. It is on the same side as the blood clot was 
removed, so we will continue to monitor this problem closely.
                                   
The latest therapy, which started six days before Christmas, is one that is repeated for 
several months before they expect to see any concrete results. It consists of five days 
of shots of Vidaza, two daily in his abdomen, combined with a continual oral medication 
of Valproic Acid, taken three times daily. After three weeks of only the oral medication 
he then repeats the shots again for three to four cycles. During the three-week interval, 
the after effects of intestinal upset and nausea begin to appear. The Hydroxyurea will 
be discontinued once the Vidaza is started. The initial effects of the shots are painful 
knots that form where the two injections are placed into his abdomen. They are 
supposed to slowly dissolve over time, but some knots seem to still be there after 
three weeks.
 
Howard remains very fatigued and requires much rest. Every other day he has clinic 
appointments for lab tests. These tests reveal the white cell count as well as the need 
for platelets and/or blood transfusions every few days. As with the other chemo drugs, 
when the Vidaza therapy works, it brings the white cell count down to almost zero, then 
slowly his new engrafted stem cells rebuild the blood system with hopefully no 
leukemia cells. That would produce normal white counts between 4,000 and 11,000. 
When the counts come down his immune system is low and he is again open to 
bacteria related illnesses. If the white counts rise above 11,000, it is an indication that 
the bad cells are back and reproducing mutant cells. This condition also leaves his 
immune system open to infection without medicinal prevention, so this is the reason for 
such frequent lab testing and maintaining a close proximity to the hospital.
 
By continued cycling of the therapy, they hope to remove any stubborn cells. Vidaza 
has been used for about two years and more specifically with elderly patients with 
AML. One of the reasons is that it is less damaging on the organs. The doctors are 
working to protect Howard’s after all the previous stress from the stronger 
chemotherapy drugs. Both Barbara Stehr and Dr. Forman agreed that this would be a 
good option for him based on his present condition. 
Howard had about three days off from any clinic appointments during the New Year’s 
holidays that we chose to spend nearby the hospital, in the village. He was feeling 
weak from the new therapy and just dealing with all the intestinal issues. He was still 
complaining of the pain in his right chest area and taking pain medication for it, so we 
were not venturing far from the village. On Jan 1st I noticed he was sweating quite a bit 
after taking his pain medication. I did not realize that it also contained Tylenol as well as 
a painkiller, so Howard was breaking a fever that day.  
On the morning of January 2, he slipped and fell in the bathroom in the village. He 
landed on his behind, and was not apparently injured, but I wanted the nurses in the 
clinic to take a look at him and determine there were no internal injuries as well as the 
reason for the sweating. It had been a little longer than normal between platelet 
transfusions and that concerned me. Although his appointment was not scheduled until 
the following day, there was enough going on to take him in and get him checked out.  
 
He had fever and was still having the sharp pain in his chest when he coughed. Blood 
tests revealed his platelets were low. The fever alone was enough to admit him to the 
hospital again for observation and immediate antibiotics. They sent him for another 
chest x-ray and a pneumonia type mass showed up where he was having the pain. 
Apparently, the painkiller also contained a fever reducer and was masking the fevers 
he was experiencing the day prior.
 
I waited several days to see if Howard would be returning to the village and it became 
clear that he would need to be under close observation and treatments for some time. I 
spent a few days packing things up and was able to send some boxes back to Texas 
to store until we return. I then moved the rest of our items to his new room in the 
hospital. An entire day was given to this task, as it seems we have acquired a few 
more items in the nine months we have been here than we arrived with. I was pretty 
wiped out from all the packing, moving and staying up nights and days with Howard. So, 
I was getting my sleep when he falls asleep whenever that may occur.
 
Since the second of January, Howard has had many tests. A bronchial scope of his 
lungs did not grow any bacteria as of the 10th, so they had to do a needle biopsy of his 
lung to try to determine the cause of the pneumonia. After that and all the coughing, he 
spends a lot of time sleeping. It was a little tense for knowing that this biopsy can be 
dangerous, but knowing this is a great hospital with some very specialized doctors. 
 
 
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On the 8th Howard took another fall in the hospital bathroom, which left him with a golf 
ball-sized lump on his head for the rest of the evening. I had finally fallen asleep after 
so many nights of trying to stay awake to help him, and he passed right by me. It was a 
very scary for me to hear the sound of his head hitting the floor after the door closed 
behind him. Ice packs and constant testing were needed the rest of that night to make 
sure he did not have a concussion. A CT scan of his head the following day showed 
no damage. He seems to have recovered from the bump pretty quickly.
 
He is sleeping quite a bit as has been the case with him for the last two months, some 
days he has his voice and some days it is gone. This is primarily due to the coughing 
that causes a major strain on his vocal chords and keeps him out of breath. So, he is 
not really communicating with everyone as much as he had been previously. 
 
The doctors are hopeful that they will be able to identify the specific pneumonia 
infection in his chest and treat it better once they have the biopsy results. In the 
meantime, the white blood counts seem to losing ground due to his weakened position 
and again some blast cells have returned after the first cycle of Vidaza therapy. The 
good news is that it did seem to remove all the blast cells at one point before he got so 
sick with the pneumonia. So the future cycling of this therapy is still very hopeful.
 
 
As of today, January 12, it has been determined that Howard’s pneumonia is fungal 
related so some antibiotics have been discontinued and they will continue to use a very 
strong antifungal to clear this problem. The cause of the fungus is unknown, but is all a 
part of a low immune system resulting from this disease and treatments. The infectious 
disease doctor said fungus spores are in the air and everywhere . . .   
The next cycle of Vidaza shots will begin on Friday the 13th, and will last for seven 
days. They are still hopefully optimistic that this therapy combined with the already 
engrafted stem cells from his sister will give him much hope for remission. It has 
helped others.
 
 Howard’s weight went up to a little more than 160 pounds at one point, but is all due to 
the medications and fluid retention. He has some pain in his right side from the needle 
biopsy and has begun some occupational therapy as well as physical therapy walking 
again. His feet and legs are still swollen, but the walking is recommended to help with 
his general recovery. Along with the physical therapy, the goal will be to keep him 
eating well in spite of his body not feeling like it because of the nausea and intestinal 
upsets that will come with the therapy.   
 
As of today January 19, Howard is still in the hospital and under supervision for the 
pneumonia and a blood infection that has also appeared. He is still very fatigued and 
not speaking much. The reports show the blast cells are decreasing today and 
perhaps this is the beginning of a change for the better. We have no promises, but a 
lot of hope.
 
Thank you all for the cards, calls, prayers and visits during the holidays. Your 
encouragement means a lot to us. A special thanks goes out to our friend and brother, 
Don Peake. Your help during this time has been an incredible blessing to us both. We 
hope everyone’s a new year has started off on a better note and God’s love will be felt 
in each of your lives and bless you with spiritual and physical health in 2006.  
 
It is unknown what unit we will be placed in once we return to the village, so it is best to 
use the general mailing address here. Patient: Howard Jackson . . . 1500 East Duarte 
Rd . . . Duarte , CA 91010 . Any cards will make it to him with this address as 
moving back and forth is all a part of the process here.
 
Sharon 
 
 
 
November 15
 
 
 
Hope everyone enjoyed Veterans Day. We would like to send a special salute to Mark 
Leach, who is still in Afghanistan and hopefully returning home to Texas soon. 
Howard is a former marine and was proud to celebrate the Marine Corps birthday on 
the 10th of this month. Howard sends a “Simper Fi” to all his fellow Marine brothers. 
He pulls his strength from many experiences in his past and the days in the marine 
corp., like the martial arts, is a big part of the development of that focus and strength 
today. “Once a Marine always a Marine” he says. The description of a marine is proud 
and strong. Howard embodies both of those descriptions. It may be just mentally right 
now, but he is still strong.  
Although the mind is willing sometimes the body is weak, and that is his situation now. 
Two weeks ago he was so weak he spent very little time awake much less out of the 
bed. He is regaining his strength extremely slowly. Howard’s physical activity is very 
limited now. He left the village room only for doctor appointments, slept the majority of 
the day and was not even strong enough to take calls most of the time. I was 
concerned, because he had never been quite so fatigued as he has been recently. I 
believe that his condition was caused by a combination of factors including the time 
span between the stem cell transplants, the Mylotarg therapy, the Centercid antibiotic’s 
arthritic effects, and perhaps the addition of an antifungal, Itraconazole that also causes 
side effects including weakness and mental depression. It was apparent that he was 
really being hit hard by having to deal with all of these at the same time especially 
considering he has been enduring one treatment after the other for the last eight 
months. 
For anyone reading this posting and has someone you know is going through a similar 
situation, I strongly advise you to research the side effects of each medication being 
taken. I highlight the ones that could be of concern and bring that to the doctor visit with 
me to discuss. Sometimes an alternate drug can be used with lesser side effects. I 
have a binder listing all his medications and the side effects to help me keep up with 
what to expect from each new one. It also helps me be prepared for what to expect 
and it helps him knowing this also.      
 
 
On the last appointment Dr. Forman agreed that he had not seen Howard experience 
this degree of weakness before. He agreed to stop the Itraconazole antifungal for the 
weekend to see if his strength increased during that time and started him on an 
antibiotic to prevent any pneumonia or other complications due to his suppressed 
immune system. 
 
Dr. Forman wanted to motivate Howard to get more physical if possible and insisted 
that he get out and goes do something he enjoyed. I think his body was just too tired to 
care, but as the doctor asked him what he might enjoy doing, I spoke up (hoping to hit 
a positive note and inspire him) and said “how about some boxing or a matinee 
movie?” Dr. Forman smiled and said the annual City of Hope LASD verses LASD 
fund-raiser boxing tournaments were taking place the following evening in the Olympic 
auditorium. At that point he insisted on giving us two front row tickets and VIP passes 
and really pressed us to go. Howard said he would let him know if he was feeling up to 
it early the next day. After speaking to his son, Howard Jr., who offered to drive and join 
us, he accepted and we finally had a day outside the hospital grounds.  
 It was very tiring for Howard, and he moved slowly, but he had a good time. Dr. 
Forman was there, looking the crowd over to see if he made it and was elated to see 
he did. Howard’s former boxing manager, Gwen Adair Farrell was also there as a 
regular boxing judge for this event. It was a great pleasure to visit with her again. This is 
the same auditorium Howard boxed in years ago and won the “ fight of the year” so it 
has special memories for him. Another friend, Terry Warwick, who was pleased to 
experience his very first boxing matches at the ring with us, also joined us. It turned 
into an unexpected evening of fun for us all.  
Since that outing Howard and I made it to a local afternoon matinee and we walk to and 
from the appointments here at the COH. It is a very slow recovery of strength this time 
around. His body still requires a lot more rest than before. His sister’s stem cell is 
showing some signs of engraftment in the form of itching, nausea and constant upset 
stomach and some skin color changes again. Apparently he will be going through the 
GVHD again. To what degree is different for everyone, but that is a good sign. He is 
producing his own platelets now, which is also a positive indicator. On the other hand, 
some of the bad cells are still showing up in his tests. They will continue to keep them 
at bay and suppressed to the point that the new stem cells can take hold. It is truly a 
balancing act with the disease and the drugs. 
It was so nice to hear from all the office staff again recently. Kimberly, Marie, Laura and 
Lani we love you. Thank you for the support and special things you have each done for 
us. You bring that famous smile back to Howard’s face and “that’s what I’m talkin bout!” 
We appreciate Ilona’s ever encouraging support for us both and her wisdom from one 
who has personally walked this path of chemo and radiation therapy. You are all a part 
of our extended family always. We miss the daily life interactions we all enjoyed there 
in the office together. We have shared some good times, and look forward to having 
some more good times together again in the future when this is all just history.  
Dr. Forman informed us we would be here through Christmas and probably for a while 
longer. It all depends on how well the engraftment of cells and recovery goes. Living in 
the future only adds stress to the situation, so we live in the moment. However, we are 
blessed and thankful that the Norris family has continued to hold the job position 
available to Howard upon remission and his ability to return to work. What a blessing 
they have been to us.
 
Howard’s temp flared on Monday night after he took a warm shower, so we decided to 
try Tylenol and see if that would bring it down. His temperature then dropped to a 
normal reading, so we decided to watch it overnight to see if it remained there. Early 
the next morning we arrived for the doctors’ appointment and lab testing. Howard’s 
temp was back, so they took extra blood cultures and sent him for an array of tests. 
The fevers indicate an infection somewhere in the body. Other tests reveal his liver 
counts are higher than they should be which is and an indicator that perhaps there may 
be some liver damage from all the therapies. Or perhaps it could be from the stem 
cells engrafting. He has been given a variety of antibiotics to target a large span of 
possible causes.   
His platelets were low, so he had to have a transfusion also. The pre mead for 
platelets put him to sleep for quite a while. He has been pretty fatigued from all of this, 
and he needs a good rest anyway. He sleeps most of the time in the hospital now, but 
is getting the constant care he needs right now.
 
For those of you who communicate with Howard via email, he is still unable to answer 
you personally, but I do print out your emails from a patient services area and read or 
give them to him. So, know he does get your emails. It may take me awhile to respond 
to you, depending on the daily situations and events, but I do my best to get all your 
messages to him. You may also visit his site at www.howardjackson.net to read these 
updates and more on the champ.
 
I have learned to be thankful in all things, for even the unpleasant ones can end up 
producing a blessing. Character is truly formed in the trenches. Remember, all things 
work together for good to those who love the Lord and are called according to His 
purposes. We are thankful for the many friends and family who have constantly 
encouraged and prayed for us throughout this very challenging struggle for life. Each 
of you has eased our burden in some way and even if you have not been able to visit in 
person, know that we know where your hearts are. For all of you, and for our 
all-powerful and loving Heavenly Father, who holds each of our breaths in His hands, 
we are ever humbly thankful.
 
May you each be blessed with a Happy Thanksgiving with much to be thankful for.
 
Sharon & Howard
 
 
 
 
 
November 1
 
 
 
These past several weeks have been tough ones. Howard has been extremely 
fatigued from the two therapies’ so close to each other and the hiccups continued for 
more than four days. One of the drugs they used to treat the hiccups acted as a 
sedative so during that time Howard spent a lot of time sleeping. Unfortunately, the 
hiccups would come back as soon as he sat up and ate anything. He had a bout that 
came so fast that he could not catch his breath, and we all had a moment of real panic. 
He finally was able to relax himself enough to slowly take in a breath, and when it was 
all over the hiccups had disappeared. For the time being no hiccups have returned.  
 Howard had to be put on the antibiotic that causes him major muscle pain and stiffness 
for precautionary measures in preventing a bacterial infection. He was on this 
medication until they were sure he was out of danger and were able to discontinue its 
use. It literally makes him feel as if he had a severe case of arthritis with all the aches 
and pains all over his body. Walking for just 15 minutes takes all his effort and he would 
immediately fall asleep after returning to his room. It has been four days now that he 
has been taken off the antibiotic and he is still moving very slowly.
 
His sister arrived on the 19th and was sent for blood work ups and testing the following 
day. Her results were all good and they informed us they would need her stem cells 
once again. The procedure was similar to the first one. Corliss received two shots 
every day for four days and on the fifth day, October 25th; she donated 4.8 million 
stem cells after six hours. This time the Quentin catheter was placed in her upper body 
and it went very well. Once the donation was complete and she was resting for 
observation, I returned to Howard’s room to be with him while he received the new 
stem cells.  
He slept through the 45-minute infusions and did not experience any side effects this 
time around. He woke up soon afterwards and was able to eat a meal and spend 
some time with his sister and myself before I took her back to stay in the village room 
with me. She is now fully recovered from the donation and will be returning to Detroit 
on the 2nd of November to schedule surgery on a knee injury (which took place in July) 
that has kept her in a brace and wheelchair during the time she was here.
 
Howard’s white blood counts rose after three days to the point that he was allowed to 
return to the Village to bed rest here. He is still unable to go anywhere except to the 
hospital for appointments. His body is just too fatigued and he is still very vulnerable to 
catching anything going around. With his return to the village I am back in charge of the 
daily care for his new Hickman catheter as has been the case in the past. Although he 
is still unable to go anywhere yet, he is receiving home cooked healthy low bac meals 
again that he is more accustomed to and getting to sleep without the constant 
interruptions that is all a part of the hospital scene.  
We have been alerted to the potential for a flare in his GVHD at this time in the form of 
fever, intestinal problems and the same side effects he experienced with the last stem 
cell transplant. He is presently experiencing a very sensitive stomach especially after 
eating. One of the reasons for the flare is because Howard is off the anti rejection 
drugs this time around so his sister’s stem cell can engraft completely and to fight 
against any leukemia cells that may have possibly survived the last targeted 
chemotherapy.  
Dr. Forman will be keeping a close eye on Howard. He is hopeful that the stem cells 
will be able to fight against the leukemia and bring Howard’s condition to remission. 
There may be more of a battle ahead for Howard which could possibly include more 
treatments, but that has not been determined yet. He is now spending most of his time 
resting and trying to rebuild his energy level. We will have regular doctor appointments 
on Mondays and Thursdays while here in the village. Please keep Howard in your 
prayers. 
 
 
October 18
 
  
 
October 15 was the 100-day marker for the post stem cell transplant. This is the date 
that we had been counting down to, with hopes of a forth-coming release date from the 
hospital. But with the latest complications, there is no telling when he will be well 
enough to leave. On Oct 10th Howard was readmitted to the hospital and the targeted 
antibody therapy was given. Mylotarg (which is a type of chemo) is used specifically for 
post stem cell AML patients who have been determined to be in remission and then 
experience a first relapse with the leukemia. They have to choose the medications 
carefully based on the stress they may have on Howard’s internal organ functions. As 
mentioned earlier the high doses of chemotherapy previously given have put a great 
deal of stress on the kidneys and liver functions and he has already had the maximum 
radiation allowed by this time. He is still in a weakened condition as recovery takes 
time after the stem cell infusion and while engraftment is taking place.  
He has now experienced the skin discolorations, itching, and tenderness in various 
areas and intestinal changes as normal side effects from GVHD. He has had some 
mouth irritation recently that included a large ulcer type sore that ran the length of his 
tongue. The ulcer is so painful that he can only eat really soft foods. The cause may 
have been the GVHD or the Mylotarg, but it was not pleasant. Speaking was a real 
effort, and those of you who know Howard, know he enjoys talking, so this was tough 
on him. He has healed at this point from that problem and hopefully it will not return 
again.
 
His recovery from the blood clot and its removal has gone very well. Once the Hickman 
shunt was removed, he began feeling a little better and more independent again. But 
soon after the Mylotarg was given the first time Howard began to experience some 
major fatigue. On the 12th Howard had to have the Hickman replaced to allow for future 
infusions, blood tests, etc., and the next round of the Mylotarg scheduled for the 17th. 
Unfortunately by the 13th or 14th Howard began running fevers and it appears a post 
surgery staff infection set in. In his weakened and immune-suppressed condition it is 
not a surprise as it is always a risk.
 
 On a good note, I was able to stop Howard from receiving an antibiotic that had been 
ordered by an on call doctor while Dr. Forman was out of town. It was the one that 
caused him so much suffering with muscle pains back in June of this year. She 
listened to my request to try something else and kept him on an alternate antibiotic that 
seems to have worked for the staff infection. I knew the added stress of this on top of 
his present problems would have put him in a really bad way at this point of treatment. 
The antibiotics did the trick just in the nick of time because he was fever free and able 
to continue with the second round Monday night the 17th as planned.
 
Recently Howard is battling the hiccups, which are either a result from one of the 
medications recently given or some irritation to his esophagus and has battled that for 
the last three days now. The medications used to calm the hiccups also put him to 
sleep, so he has done a lot of that lately and been unable to carry on a very long 
conversation with anyone. Rest is good for the fatigue and there is more to come with 
the latest round of Mylotarg. The specialist will decide tomorrow if a scope of the 
esophagus is necessary or not. I hope the new drug he is getting will do the trick and it 
will not be necessary, but can you imagine having the hiccups for hours at a time! He 
exhausts me just listening. We tried every antidote for hiccups I could find on the 
Internet. Nothing has worked completely yet, but the professionals are working on it. 
 
I have made arrangements for Howard’s sister, Corliss, to arrive here on the 19th. She 
will do lab tests the following day and begin whatever plans Dr. Forman and his team 
has decided upon at that time. It may require boosting her cells again taking her blood 
on about the 4th or 5th day. Her blood cells will then be given to Howard to boost the 
blood already in his body, which are all her blood type now. They do not plan to draw 
the blood from the same area as before due to the problems she experienced 
previously with healing the site of the incision. The groin area is just used too much and 
seemed like it was not able to handle the pressure from even minimal movement to 
allow for quick healing. The doctor feels a one-week stay will be sufficient to do what is 
necessary before she returns home to Detroit . As always, Corliss is willing to do 
what she can to help with her brothers recovery. He will also be requiring extra blood 
transfusions and platelets during the next week, so I will be heading back to the blood 
donor center to offer my help again as well.   
Dr. Forman is optimistic that this therapy with the extra blood boost will accomplish the 
task to return Howard to a state of remission while his body regains strength. The 
positive news is that the blast cells (leukemia producing) that were present have 
disappeared completely after the first round of Mylotarg. The future treatment plans for 
Howard have not been decided at this time. It is one day at a time and dependant on 
the results of the present therapy.
 
 
We are keeping a very positive outlook on this “set back” and continuing to pray for 
Howard’s complete remission and recovery. Each of us has to endure our own times of 
physical trials and tribulations, but through it all God can refine us to become more 
aware of His love for us and our purposes. One cannot be involved in something like 
this without feeling the rippling effects. Life is a gift to each of us and to be valued 
every day. Howard says this is just all a part of “doing the dance.”   
My closing thought today would be that each of you who reads this will tell someone in 
your life how much you appreciate them while you are still able. Thanks to each of you 
for your visits and thoughtfulness. God bless you and may you bless God.
 
Sharon 
 
 
 
September 29, 2005
 
 
 
Living from moment to moment can be challenging. We never know what will happen 
next. But something has happened that we were really hoping would not. The leukemia 
has returned to Howard's blood again. He is such a fighter and he gives 110% all the 
time, so he will continue to. But, this is a very aggressive type of cancer and requires 
more therapy to achieve the results we are wanting. Howard will be going back into the 
hospital on Monday to begin a new therapy called antibody therapy. First the anti 
rejection drugs have all been stopped as of three days ago when we got the news that 
the bad cells were showing their face again. That will help the donor cells begin fighting 
full strength without anything holding them back. Second Howard has been put on an 
oral drug to bring his white blood counts back down less than 10,000 so the antibody 
therapy can be started Monday. Right now his counts are above 40,000. Normal is 
between 4,000 and 11,000, so he has all those mutant white cells reproducing once 
again. The stem cell just has not been able to hold for whatever reason.
 
The doctor mentioned that perhaps the blood clot that he just had removed was 
somehow connected to the leukemia cells returning and causing them to clot. That has 
not been verified, but mentioned as a possibility by the doctor. I am still giving him daily 
injections of the blood thinners to keep any more clots from forming in the meantime. 
The doctor has assured me that the thinners have not had anything to do with the 
leukemia returning. But the blood clot and the weakened position it put Howard in at the 
time may have left an open window for the cells to crawl through (so to speak). It is all 
just speculation as to why the leukemia is back again.
 
The next step is to push the leukemia back into remission through the antibody therapy 
and allowing the donor cells to take over. The possibilities in the future may include 
another round with chemotherapy and another stem cell transplant. We are waiting to 
see what the definite plan will be once the antibody therapy has been put into place and 
Dr. Forman makes that decision. We are preparing for another battle here by taking the 
weekend off to visit his grand kids and some friends. He will be away from the hospital 
and the village this weekend but back again on Monday.
 
 
 
 
September 25, 2005
 
 
 
Just as we thought Howard would glide through these last days of the 100-day post 
transplant period, he hit a bump in the road. He was feeling well enough to do a little at 
home exercise here at the village, when he noticed that his right arm was swelling. At 
first we though he was just getting a nice pump, but when we noticed it was only on one 
arm, we knew we had to make a trip to the emergency unit. The on-call doctor took a 
look and proceeded to readmit him to the hospital and do some tests. It turned out that 
his catheter had been drawing poorly for the last four or five weeks and this was the 
source of the problem. It had moved from its original position, near his heart, to a total 
different place in his right shoulder. It was hitting on a main blood vessel in his arm and 
caused a blood clot to form. The clot began to restrict the blood flow through his right 
arm. It has the potential to break away and cause other serious complications. Howard, 
the doctors and I discussed the options and agreed to remove the clot through an 
angioplasty.
 
An angioplasty is the surgical repair of a blood vessel, either by inserting a 
balloon-tipped catheter to unblock it, or by reconstructing or replacing part of the 
vessel. By doing this surgery, Howard will be able to continue to a workout in the future 
without concern that part of the clot might remain and cause problems. All went well 
with the surgery and they reported that 85% to 90% of the clot was removed by this 
method. While he was hospitalized, his chest catheter was also removed and the 
doctor put him on blood thinner injections twice a day until further notification.
 
Five days passed in the hospital before he was released and allowed to return to the 
village. We were reminded of the freedom he enjoys here in the village verses the 
isolation that is required when he is hospitalized. I administer those at noon and 
midnight regularly now that we are in the village. Not my favorite thing to do, but 
sometimes we have to do things we are not always completely comfortable with, to get 
the results we want. The thinners help to assure that another clot does not form again. 
His health is my goal, so I take a deep breath and give him a shot in his stomach area 
as prescribed.
 
The Graft Verses Host has begun to show with skin discolorations, a rash and major 
itching. Medications are being used to offer some relief, but it is still a constant irritation 
to him. This is day 80 post stem cell transplant and things are going just about as 
expected, other than the clot. Since the catheter is no longer in his chest there is less 
chance of an infection and a little less upkeep there. However, he has to get a lot more 
shots from the lab when he goes for his biweekly check ups. We are hoping that the 
need to replace the catheter will not arise again. Most patients who are not using their 
own stem cell have to keep the catheter in for the entire 100 days and sometimes even 
longer. There are a lot of side effects and complications from the GVHD that can 
require hospitalization and intravenous medications. Howard keeps his strong positive 
outlook and prepares mentally for all the possibilities taking the offensive position 
whenever possible. Hopefully he will be able to remain here in Parson's Village without 
further complications.
 
Since arriving here spring has changed to summer, which has now changed to fall. The 
air is a bit cooler at night and there are a few more overcast days than before. During 
my daily walks through the gardens I have noticed ripening apples as well as a second 
crop of oranges, lemons, mandarins and limes all about the property. The peaches and 
pears are long gone but I am keeping an eye on a lone persimmon tree with fruit that is 
nearing the picking stage now. I learned there is such a thing as a strawberry tree with 
lovely multicolored balls that turn from green to yellow to bright red before falling to the 
ground. The head of the landscape department tells me that they are edible, but not 
very tasty. I will pass on testing these.
 
An interesting observation here has been the flock of bright green parrots that have 
been visiting the grounds and causing a lot of excitement. They are large, very noise 
and cause me to stop and follow them. Time passes very slowly when waiting to be 
healthy again, but living one day at a time I always find something God has placed in 
my path to be thankful for. Through the beauty of His creation surrounding us, the 
extremely talented medical staff, and family and friends he has blessed us with, I can 
truly say we "feel the love!”  One of those blessings that have played a major role 
during this entire process is the support and love that have been felt from Chuck and 
Gena Norris. They have been there from the very beginning of this journey starting four 
years ago. Their constant prayers, concern and unconditional support through this 
entire process, has been a blessing to us both. Not only have they been Howard's 
employers, but also his family. Erik (Shadow Duck) Thanks for the wheels, that loaner 
means a lot to our daily routines. Mom (Wilma), we love you and appreciate you so very 
much. The impact your life has had on all of us is unmistakable. Thank you for taking 
the time to pray and being such a constant warrior for the Lord. Finally, Aunt Gladys, 
you better get well yourself so we can all go dancing together! We love you all.
 
It seems I spend a lot of time thanking people on this site, but without them this road 
would be so much harder to travel. The past webmaster, Marie White for all you have 
done establishing this website for Howard and the present webmaster Kevin Burton, 
without you these postings would not even be possible. For the time Kevin gives to us 
designing this site and therefore time his family has to sacrifice, Sara and girls, we love 
you too! There are so many more that have not been mentioned that should and I hope 
you all know how important you each are to us.
 
 
 
September 14, 2005
 
 
Almost a month has passed since the last update. Howard and I are blessed to report 
no major occurrences during that time. Howard's recent bone marrow biopsy just came 
back and he is still clear of any leukemia cells to date. However, he has just started to 
experience some of the Host Verses Graft Disease in the last few days. A rash has 
appeared on his neck along with some full body itching. A cream and oral medication 
has been somewhat helpful in reducing the discomfort it brings. We are not surprised 
to see “a little something” going on, as this is day 69 post transplant. Many of our 
friends here have had to go back into the hospital numerous times during the 100 days 
and especially as they entered the last 30 days. The intestinal upset seems to be one 
of the most common bacterial reactions. We are hoping that Howard will not have to do 
that "dance." Our prayer is that the GVHD reactions won't be severe enough to make 
the move back to "The Big house,” but we won't be too surprised if that ends up 
happening at some point soon.  
Howard has kept the indomitable spirit that he has always displayed while facing any of 
his opponents in past "fights.” He is standing strong and positive that his leukemia will 
remain in remission. However, he lives his life day-to-day and moment-to-moment 
when it becomes necessary. Considering all the human suffering and tragedy of 
heartbreaking magnitude in New Orleans and Mississippi , we are just counting our 
blessings here.  
Since the move to the village and becoming an outpatient, Howard has not had access 
to the physical therapy training he had in the hospital. Walking to and from the hospital 
for appointments are the main form of exercise we have available to us right now. I 
have improvised my fitness regime from the beginning. Staying physically and mentally 
fit is very important not only for the patient, but also the one in a caregiver capacity. 
With that in mind, we were thankful when Bob Wall and David Krapes delivered one of 
Bob's total gyms to us this week along with a new supply of his Kickbars and K.O. 
recovery fitness water. Bob has been a consistent encourager and friend delivering 
packages of health promoting products for us both. Robert Temple, and Steve Fisher 
also have our thanks for their kindness, generosity, and concern for our fitness needs 
as well. We truly appreciate you.
 
We have a several very special friends and fellow cancer survivors, Denise Singson 
and Ida Fogarty, who have also gone through the stem cell transplants at the City of 
Hope during Howard's first stay here and during the follow-up treatments three years 
ago. They are in remission now and have been able to return home to continue their 
lives in positive ways. You both have been so supportive and continually encouraging 
to Howard and myself during his relapse and return. They are proof that "what goes 
around comes around.” You will always be our family. Aloha. Also, Carol Kaufman, 
keep being strong and positive with your battle, we love you so very much and stand 
with you in your present struggle with your recovery. As the song goes "We all need 
somebody to lean on, and you can always lean on us!"                                     
To each of you who have lifted Howard up in prayer, he thanks you. We have felt the 
touch of your prayers every day. We have faith in the power of those prayers and 
believe that Our Lord will continue to hold Howard in the safety of his loving care and 
bless you for your compassion.
 
 
 
August 17, 2005
 
 
 
On July 28, Howard was able to move to Parson's Village! His white blood counts were 
up to 5,600 and all other counts looked good enough to allow some independence and 
freedom. This move meant we are now responsible for preparing all our own 
low-bacteria meals and taking the 35 to 38 prescribed pills daily. I flush his catheter 
every day and also change the dressing on his catheter every few days when it gets 
wet. Howard has regular appointments on Monday's and Thursdays for blood work and 
x-rays. A bone marrow biopsy was done on August 4 and the results came back clean. 
Dr. Forman's words to Howard recently were "you are once again in remission and God 
willing you will stay that way, now let’s hope they hold." That was very good news.  
Our hopes are that he is past the hardest stage and that there will only be minimal 
GVHD. Howard has not had any Graft Verses Host Disease as of yet, and he is on 
daily anti rejection drugs to help accomplish this acceptance of the donor's blood 
(engraftment). The next step will be to slowly reduce the anti rejection drugs to allow 
some of the GVHD to show up before he is released and returns to Texas . We are 
on day 42 of the 100-day close-watch period. After that time Dr. Forman will decide 
when he thinks it is safe for Howard to return to Texas to continue his recovery.
 
Howard is able to get out and around a little bit now. He was able to spend the 
weekend with his son in Moreno Valley this past weekend. Spending time with the 
grand kids and doing a little fishing was just what the doctor ordered. Mostly only small 
blue gill fish were caught, but I managed to nab a pan-sized catfish that was a fun tug 
on the line. Fishing is something we both enjoy! Howard is usually the trophy winner 
when it comes to the big fish, but not this time!
 
We are staying very close to the hospital as Howard is still supposed to stay away from 
crowds, anyone with an illness, eating out in restaurants or places where the 
low-bacteria diet cannot be monitored. Unfortunately, anything barbecued on an 
outside grill is also on the "off-limits" list as well as any sushi! That is a hard one! We 
were advised that the best results come from strict compliance with the guidelines until 
after the 100 days are up. Then look out Red Lobster, here we come. He will still stay 
away from raw fish for some time to come though.
 
Remembering when to take which of the 38 medications, Howard required daily seems 
to be a two-brain task. The complications come when the instructions require some 
with food and some must be taken no sooner than one hour after food and no food for 
two hours post medication. He does this twice a day, and has appointments that keep 
him tied up for hours, it gets a little tricky. Especially when preparing his food in the 
bungalow under strict low bacteria conditions. No micro waved fast foods allowed. But, 
all is done happily with the results he is having.
 
The City of Hope grounds are very beautifully landscaped place to have to be when 
dealing with a life threatening disease. There are always flowers in bloom somewhere 
here as well as fruit trees, bearing their harvest or a newly discovered statue around a 
corner. The grounds were designed to create a tranquil and pleasant garden 
atmosphere where the beauty of new life and God's creative handy work is clearly 
evident. I stay busy with things needing to be done, as they never cease as long as life 
continues! However I've learned to always stop and smell the roses on my afternoon 
walks. Howard is catching up on some writing that was set aside while he has been 
focusing his efforts on successful survival thinking.
 
 
 
 
 
July 26, 2005
 
 
 
We have good news. Howard did very well with his consolidation chemotherapy. Dr. 
Forman and his team decided to keep him on a low-dose chemo. It finally began the 
process of lowering the white cell count down by the third day. He also decided to 
move the transplant up a day so the blast cells would not have any chance of returning 
before the new donor cells were infused. The peripheral blood stem cell infusion took 
place on the 7th of July and lasted only 45 minutes for the entire process. The frozen 
stem cells were thawed slightly and immediately infused into his bloodstream through 
his VAD (catheter). The usual side effects during this infusion are nausea, vomiting and 
cramping. Howard had a small amount of this. The day of infusion and for days 
afterward the room was filled with the smell of a sweet garlic odor. This was the same 
odor noticed when he did his own (autologous) stem cell transplant three years ago on 
July 22, 2003.
 
Just before the transplant Howard was pre medicated with Benadryl. It is a great 
relaxing agent if you go with the flow. It also protects him from any allergic reactions to 
the foreign blood product being administered. So, he slept most of the day after the 
stem cell was done. After this point, the waiting begins for engraftment and the side 
effects to appear.
 
During the process called engraftment, the donor stem cells that have been infused 
make their way to the bone marrow, and begin producing replacement blood cells. This 
process lasts for several weeks, and during this time, Howard will be very susceptible 
to developing infections, until the engraftment is completed. Preventing any infections 
is a high priority during the engraftment and recovery process. So, Howard was placed 
on several antibiotics to prevent problems that posed a potential danger to him based 
on blood tests and his history.
 
The complication called graft-verses-host-disease (GVHD) occurs in stem cells from 
persons other than the patient’s own cells. In essence Howard's sister's stem cells will 
take over his system and will attack all foreign cells including any of Howard's old blood 
cells. This is a good thing when it comes to the Leukemia cells that may be still present 
in Howard's remaining cells. Since Howard's sister was a perfect HLA match, the 
GVHD is expected to be less acute than if it were from an unrelated donor. However, 
they do expect some reactions. They are listed as disorders of the skin, liver and the 
gastrointestinal tract. Shingles is a common reaction and a painful one as well. 
Diarrhea, cramping, skin rash and other symptoms could occur.  
Also in the case of a female stem cell donor and a male recipient, the female donor's 
cells that do not share the genes on the Y chromosome may see factors that are 
produced by genes on the Y chromosome as foreign. This factor makes the risk of 
immune reaction higher. Howard has had some lower intestinal problems, which have 
caused him a fair amount of discomfort, as well as a rash that has just appeared on his 
neck. These are both being treated and under control at the moment. The reactions 
can show up anytime in the future, but the first 100 days after the transplant have the 
greatest potential for complications.
 
Howard has been able to eat a regular diet, is in good spirits, and keeping other 
patients encouraged about a positive outcome with their own treatments. When he is 
allowed out for walks, he is only allowed to travel through the BMT unit and he must be 
accompanied by a physical therapist. The walks last up to 20 minutes right now 
depending on his level of strength each day. Since he is still in contact isolation he is 
required to wear the gown, gloves and mask whenever he leaves the room to protect 
others from his particular bacteria and protect him from others’ bacteria. There are 
many differing types of bacteria that do show up during hospital stays. It is a bit 
restrictive for him, but he still gets to visit patients from their doorway on this floor. 
Presently, he cannot go outside or to other areas of the hospital.  
During the first week after the stem cell was infused, Howard required a few 
transfusions of platelets and blood, but before long he began producing his own cells. 
Howard's white blood counts are up to 4,200 and he is looking better every day. 
Normal White Blood Counts for a healthy male are 4,000 to 11,000. Our desire is that 
the counts do not go above 11,000 as a higher count would reflect too many white 
blood cells, most of which will be mutations and that is a sign of Leukemia. He is now 
being switched from intravenous medications to the oral versions so he can be more 
independent. Once this is complete, they will consider sending him to the Village 
bungalows here on property, to reside for observation and outpatient treatments. We 
are expecting to make that move by the 28th or 29th of this month, barring any 
complications.
 
Next week miscellaneous tests will be done to closely monitor his organ functions as 
well as blood composition tests to determine the strength of the anti rejection drugs he 
is constantly receiving. They watch his mineral levels and add supplements to replace 
those that are deficient due to the numerous drugs. Finally, they will do a bone marrow 
aspiration in about a week to determine if any leukemia cells are still present in the 
marrow. Staying close to the hospital for the next several months will be mandatory for 
weekly check ups and any emergency situations that can and usually do arise during 
this stage of the GVHD.
 
In other news, we were moved to the new Helford Clinical Research Hospital on the 
15th of July and what an experience that has been. The hospital is a $200,000,000 
project and very high tech. The rooms look like something out of Architectural Digest 
Magazine. We were one of the first groups to be officially paraded over to the building 
early that morning. The new hospital has six floors and we are on the top one. One side 
of the hospital has a view of the mountains and the other has a not so beautiful view. 
The lobby/ waiting room on the 6th floor has an awesome panoramic view of the 
mountains and the City of Duarte . We were blessed to get the mountainside view, so 
my prayers were again answered.
 
Also, to our surprise, we were given a connecting VIP room. It is similar to a nice hotel 
suite and there is only one of it's kind on this floor. I believe the blessing of getting this 
room is the realization of a scripture verse that I kept getting confirmations on. The 
verse is Matthew 6:26-34. It has been such a blessing and as a result I have been 
able to catch up on some much needed sleep. Three and a half months in a hospital 
room chair with nurses coming in and out all night long has been a challenge! 
Unfortunately, Howard cannot spend time in the suite with me as he is still in contact 
isolation. He has many of the same amenities in his own room and I am still only steps 
away if a need arises. The assignment to this executive suite was quite a blessing and 
honor for me. I am going to get some good nights sleep on the sofa sleeper in the 
suite.
 
Each room comes with a nice sized flat screen TV monitor with DVD and VHS players. 
When Howard is not enjoying one of his detective shows, we are able to watch the 
many movies that have been supplied by family and friends. The hospital beds are all 
equipped with built in weight scales now so he no longer is asked to get up and out of 
bed to get his weight. It was not a problem during the day normally, but when they 
came in during the wee hours of the morning, it was a little tougher to get up for. It is 
also a big benefit for anyone who is just out of it after the chemotherapy sessions and 
is just too weak or sleeping to get up.
 
Howard's sister is now vacationing with her husband and grandson in Louisiana . She 
is doing well and having a wonderful time meeting her husband's relatives in both 
Mississippi and Louisiana . They will all return home to Detroit by the second week 
in August. Corliss is very much appreciated and loved for all her contributions to her 
brother, so we are happy she is able to enjoy time with her family again.
 
We give our deepest respects and appreciation to all the Doctors, Nurses, PCAs and 
Staff members here that have taken such good care of Howard. We have heard it said 
many times over, if you have been to other hospitals and come to the City of Hope , 
you would not want to go anywhere else ever again. The people make this place the 
world-renowned facility that it is, and we appreciate each of you for treating life with 
such compassion. You will each have a special place in both of our hearts always. So it 
is with all the friends we have made here who have also gone through the life 
challenging events with us. Friends like Peter Edalat who continually shows his courage 
to face whatever he has to get through his battle here. Life will always be appreciated 
for the great gift it is and we will forever value our friendships with each of you. We're 
one big extended family now.
 
To summarize things up, so far so good. The doctors are pleased with his results and 
remind us this is a day- to-day situation. Howard is his usual inspiring and positive self, 
visualizing the AML in total remission and after five years being classified as CURED. 
Thank you for your life-giving prayers that have sustained Howard through each and 
every day.
 
 
 
 
 
July 1, 2005
 
 
 
On June 14, Dr. Forman did a bone marrow biopsy checking for any leukemia cells. By 
the 17th we had the results that it was clean, and as soon Howard's counts came up 
high enough they would move forward with the final chemo and stem cell infusion. After 
waiting about a week for the counts to rise on their own, it was decided that Howard 
would get the drug that promotes growth of the white cell count in the bone marrow to 
help speed things up.
 
Howard started the pre-chemo testing to be sure all his organs were in good shape for 
the upcoming battle of the foreign stem cells (his sister's) taking over his body. If any 
organs are not healthy, they will be attacked by the new stem cells, so it is vital 
everything is working properly in advance of this phase. By June 27, (Howard's 
Birthday) only one test remained. The CT scan. It is an easy test once he filled his belly 
with barium all morning. Howard says barium tastes like drinking chalk, even with the 
flavoring added. So that is what he got to have for the first half of his birthday. After the 
scan he returned to his decorated room and was surprised with cake, calls, cards, 
family and friends coming by to sing him Happy Birthday. We even enjoyed a special 
moment of singing from our nurse friends on wing five, so the day ended better than it 
started for him.
 
The following day, June 28, Howard had a surprise visit from "The Boss,” Chuck and 
Gena Norris. They stopped by to wish Howard a happy birthday and spend some time 
with him.  
Howard and I moved to the Bone Marrow Transplant Unit. I quickly undecorated our 
room in wing five and engaged the help of security and their mini pick up truck for 
moving all our belongings to our new tiny room in BMT. His cell counts were rising 
quickly and it was decided to start the treatments right away. Unfortunately, there were 
blast cells growing with the other cells, which called for action. So, we rushed over to 
the bone marrow transplant building to begin the last round of chemo treatments. The 
initial chemo will last for five days and then a different chemo for the final day. 
Afterwards there will be two days of anti rejection drugs and a day of rest before the 
stem cell infusion.
 
The target date for the stem cell infusion is the 8th of July if no extra chemo treatments 
are required. Dr. Forman says this particular drug therapy should be fairly easy on him. 
He wants to knock those "little bad boys out" and then send in the stem cell soldiers to 
help fight any that may have been hiding in the shadows. Maximizing the effectiveness 
of the drugs on the leukemia while minimizing the negative effects on the organs is a 
constant challenge. So far all is going as planned and his white blood counts are 
dropping as hoped for. Once the stem cell is infused there will be 100 days of close 
monitoring on an inpatient and outpatient basis. More on that later.
 
The room we are in now is very small, but the Lord has blessed us with a beautiful view 
of the rose garden and park area here at the City of Hope . I see God's handiwork 
daily in the beauty of all the lovely flowers and arboretum type landscaping outside our 
window. There is a bird feeder right outside our window that was a gift from the patient 
(Sherry and Ashley Lauren Morton) in the next room. It attracts many different species 
of birds and also a pair of squirrels that chase each other playfully up and down the 
trees every day. I am reminded that the word of God says He cares for the birds of the 
air and loves each of us so much more. He knows our deepest needs. I realize that this 
view is a blessing for me, meant to renew my strength after three months of living in 
hospital rooms with no view. Howard enjoys the view also, but admits he is not as much 
of a nature lover as I am. Everyone tells us this is the most beautiful view in the entire 
unit. I can even see the waterfall in the rose garden from here. God is with us.
                                                                                                           
To the degree that it is possible, this is a bacteria free environment. Visitors are asked 
to wear a gown, gloves and mask to protect Howard and the other immune-suppressed 
patients. Anyone with an illness of any kind is asked not to enter the area. We are 
informed a small cold germ could put his life at risk now. His counts are so low they 
only allow two people in his room at a time. The air filtration in the room is not designed 
to handle more. We are told that soon they will discourage any visitors and have him in 
isolation for about the next two to three weeks. I also wear the same gown, gloves and 
masks as other visitors to his room. I hear that yellow in the fashion color this season, 
so at least we are all in style!
 
The caregiver shower is located about a three-minute walk from here in the Village 
Office area. There is also a four-washer laundry area there as well. Howard’s meals 
have to be only low bacteria, which require preparation under very strict conditions. 
Only food ordered from the hospital cafeteria or cooked in the village kitchen or 
bungalows here on the site are allowed. Many items on the menu are not available to 
Howard at this stage of the treatments. We plan to make up for lost time once this is all 
over!  
Howard is not only a Master in the field of Martial Arts but now he has proven himself as 
a Master of the Moment. He chooses to live moment to moment, taking life's ups and 
downs as they are thrown at him. Because of his very upbeat and positive attitude, 
Howard has become a bit of a celebrity here. He has the gift of encouragement for 
others going through similar experiences here. His friendly and kindhearted nature has 
made him many new friends. Several patients that we visited and supported while 
Howard was in remission have now come to support and encourage us during this 
relapse with the leukemia. We both have acquired a new respect and appreciation for 
life and our relationships with family and friends.
 
We hope you all enjoy our shared Day of Independence with family and friends. Happy 
Fourth of July and America , Bless God!
 
Sharon & Howard
 
 
 
 
 
June 7, 2005
 
 
 
 Howard was released to the on-campus bungalows, known as Parson's Village, twice 
since my last update. During this "time out " he ended up in the emergency room after 
only 24 hours. In both cases he developed chills and high fevers, which appeared 
within one to three hours after his catheter was flushed by a nurse or home health 
nurse. He was readmitted to the hospital each time and a new room assigned. At this 
point we have moved seven times. It has kept me busier than I had ever expected!
 
Tests were run and the results showed Howard had a rare, plant-based bacterium that 
had settled into the vascular access device placed in his chest in early April. Once it 
was determined that the infection was in the catheter, it was removed and more 
antibiotics were added to his daily medications.
He also developed a bronchial type cough about the same time, which seemed to 
hang on and drained his energy. The concern was that it might be pneumonia settling 
into his lungs. Many tests were run and it was determined that Howard had bronchitis 
and chronic sinusitis combined. It took quite a few days on the antibiotics to clear the 
blood infection and a combination of breathing treatments, cough medicines, 
antihistamines and some steroids to calm the cough. That combination finally did the 
job and the cough is gone for the time being.
 
Once all the antibiotics were doing their job and the fever gone, he was deemed well 
enough to replace the Hickman Catheter in his chest in preparation of the upcoming 
chemotherapy and blood stem cell transplant. So, Howard went back to surgery for the 
new vascular access device. When the new chest catheter was in place, they were 
able to remove the peripheral IV that was placed in his arm temporarily. That was a 
relief to him as it was more uncomfortable and he was subjected to the constant 
sticking of needles in the arm for his blood testing.
Dr. Forman did another bone marrow biopsy on the 23rd of May and discovered that 
the Leukemia was not completely gone. With each passing day blood tests revealed 
the abnormal cells, known as blast cells, were returning quite rapidly. By May 26 the 
blast cells were up to 65%. The news that the first round of treatments had not worked 
to stop the cancer cells was hard to hear, but Howard bounced back fast and was 
ready to move onto the next step to fight the Leukemia. Three years ago when he went 
through the initial treatments and his own stem cell transplant he had to do three rounds 
of treatments as well, so he is no stranger to that program.
 
Howard started on three different chemotherapy drugs May 27. One by orally and two 
by transfusions. He had one night of the oral medications followed by five nights of a 
combination of the two new chemo drugs that are supposed to have a great track 
record with wiping out the cancer cells.
As of June 7, all the blast cells have disappeared and his counts are down to zero, 
which means the medications are working. He will be getting platelets again soon and 
blood transfusions necessary to keep his counts up enough to protect him. I donate 
blood and platelets as often as they will accept them from me as my blood type O -, 
the universal donor. His energy level is not very high right now, and his voice seems to 
fade to almost a whisper on some days. The drugs usually make a patient nauseated 
and have other unpleasant side effects however he has been lucky with only minimal 
problems thus far.
 
Howard has to take his IV pole, which he named "Fred or Freddy" (from Nightmare on 
Elm Street ), with him every place he goes. Fred lights up our room at night, beeps 
loudly when he wants attention, and slows him down on his trips to the bathroom. That 
happens quite often now with all the medications he is on, with some used to eliminate 
the extra fluids in his body.
 
The sinus drainage is still an issue, keeping him awake at night. I try to keep the phone 
turned off until he is up and going which is usually after 10:00 a.m. most days. The 
doctor comes in early before 8:00 a.m. then after he leaves and the nurses get some 
tests done, he/we fall back to sleep during those precious moments of the early 
morning. Sleep is an important part of his recovery and there is activity in the room all 
day and late into the night when they come to take his vitals, weight, blood tests and 
medications.
 
During the last 10 days Howard's sister had her stem cell collected and frozen for later 
use. They were able to harvest 9.4 million stem cell, which is quite a lot. They needed 
at least five million stem cells to do this right, so Corliss was a great donor. She 
experienced a little trouble after the donation as it took a few days in the hospital to get 
enough platelets back in her body to get the blood to clot at the shunt site and 
completely stop it. Her counts are back to normal now and she is back staying with 
Howard Jr. and his family again. She comes to the hospital and stays a few days with 
us here from time to time before returning to Howard's son's home again. She will be 
returning to her home in Detroit , Michigan on July 14 to be with her husband, Al and 
grandson, Jeff.
 
We have no dates for the stem cell transplant at this time, but perhaps mid July. There 
is some rejection of her stem cells expected, but since they are perfect matches the 
"Graft Verses Host" effects should be minimized. He will be receiving anti rejection 
drugs prior to the transplant to help reduce the GVHD effects afterward.
 
Howard and I are still encouraged by the cards, calls and emails from you all. Thanks 
again to Bob & Lillian Wall who have made regular trips here to replace the video 
library they have so graciously lent us. It makes the time go by much more quickly. Bob 
also keeps us well stocked in his high protein Kick bars and water. Howard has a 
nightly snack of the protein bar which helps keep his weight stable.
 
To all who have kept us in prayer, come to visit, sent cards and made calls of 
encouragement and support, we really appreciate your love and concern. You have no 
idea how you have touched us both.
God's Blessings to each of you,
Sharon & Howard
 
 
 
 
 
April 2005
 
Well, the words we had hoped would never be uttered became a reality last Friday, 
April 8, when Howard's doctor at the City of Hope , Dr. Stephen Forman, informed us 
of the results of Howard's bone marrow biopsy. The AML (Leukemia) had indeed 
come out of remission, and he has suggested Howard start on the chemotherapy right 
away. Once again Howard has no choice but to accept the challenge that has 
presented itself upon him a second time.
 
The original stem cell transplant, which was from Howard's own cells, was not quite 
strong enough to last the test of time. He was showing signs of fatigue and then 
became sick with a bronchial virus that quickly developed into pneumonia. We were 
able to get the pneumonia under control through doctors and antibiotics in the Dallas 
TX area. The doctor in Dallas let us know on Thursday, March 31, that it looked as if 
the AML had possibly recurred, and suggested Howard return to his preferred doctor 
to get more tests done soon.
 
By the following Sunday afternoon April 3, we returned back to the City of Hope Cancer 
Research Hospital in Duarte , CA , where Howard was treated originally. Once here 
the follow-up tests were done and the prognosis was made that the cancer had 
returned. The plan of attack is two separate rounds of a stronger dose of chemo, than 
the first time. Then he will receive a stem cell transplant from his sister, Corliss, whose 
blood type is a perfect match for the procedure. God is good, as Howard has only one 
sibling left alive, and usually only one out of four siblings is a match!
This procedure will take awhile to accomplish, as the chemotherapy will take Howard's 
immune system down to a very vulnerable stage of protecting itself from all infections. 
Afterward, his system will have to rebuild itself back up to a healthier state again. He will 
then be given a short time out of the hospital and return to repeat the entire process. 
Finally, once the second round has been completed, he will follow up with a stem cell 
transplant from his sister.
 
Howard has just finished the first round of eight sessions of chemo, and his blood 
counts are falling, as are the expected results of this therapy. He is headed into that 
vulnerable stage for infections now. His spirits are high as he tackles this his second 
bout with the AML
 
Howard would like to let you know that he appreciates each and every one of your 
prayers and support during this entire process. His faith in God is strong as is his 
confidence in Dr. Forman and the entire team of doctors, nurses and everyone 
involved in his healing and comfort here at the City of Hope .
 
If you would like to contact him you may send an email to this site and include your 
information, or you may send a card to the Patient: Howard Jackson, 1500 East 
Duarte Rd , Duarte CA 91010-3000 . Please be aware that he is unable to accept 
any flowers or edible gifts due to the bacteria related with these items.
Blessings,
Sharon 
 
 
 
April 26, 2005
 
Howard has finished his first round of eight chemo treatments with great success. His 
white blood counts are now up from -0- to -500-. This means he is still vulnerable to 
catching virus or cold bugs, but is on his way to recovering with only minimal side 
effects this time. Once Dr. Forman decides the blood counts are high enough he will 
let him loose for about a week to rest. During that time out he will bring him back to do a 
bone marrow test to verify that the Leukemia is in remission and he will be ready to 
move forward on the next round of chemotherapy and preparation for his sister's stem 
cell transplant.            
 
We will be staying close by the hospital during this time in case of any possible 
infections that could occur. His sister is here now from Detroit , MI. and is presently 
going through the tests required to be his stem cell transplant donor. Corliss is a 
blessing as mentioned earlier being his only sibling and a willing perfect match. We are 
very thankful for her and the love she has for her brother. At this point she spends 
some of her time with Howard Jr. and his family in Moreno Valley and some with 
Howard and me in the hospital room.
 
I (Howard's fiancée, Sharon ) am here at the hospital all the time. It is my second time 
around with him for this treatment so I am familiar with the protocols now. We have both 
become semi-pros by now, but not really by choice. Or at least we think we are pros by 
now.
 
I have all the cards and letters hanging on the walls facing Howard's bed so he has a 
constant reminder of the love and encouragement from all of you. He is very thankful 
and appreciative of the prayers, love and support from each and every one of you.
 
We especially want to thank The Norris, Chuck and his wife Gena for their love, and 
encouragement for Howard in all the ways that they have been here for him. Without 
their continual support the road ahead would be a much tougher path to walk. We both 
thank you for the care and concern that you have shown in so many ways. You have 
treated us as your own family. And you have been a real blessing to us.
 
We would like to also mention our thanks to Bob & Lillian Wall and worldblackbelt.com 
for their wonderful friendship and support over the many years. Because 
worldblackbelt.com reaches so many martial artists, Howard has enjoyed the support 
and encouragement of many. They have given Howard much motivation and have truly 
been a blessing from his extended martial arts’ family.I will keep you all updated on 
Howard's progress.
 
Sharon 
 
 


The Champion's 1st Battle 
With Leukemia 
 
 
 
October 30, 2002:
A letter from Howard "I would like to extend sincerest thanks and appreciation to all 
those who sent donations to the Howard Jackson Leukemia Fund. I am deeply touched 
by your acts of kindness, supporting me through this entire process. I would also like to 
acknowledge the doctors, nurses, and staff at The City of Hope in Duarte who 
administered outstanding care in treating the Acute Myeloid Leukemia. Together, they 
were able to make my time as pleasant as possible while putting my cancer in 
remission."
At this time I will no longer be accepting personal donations, however, anyone 
interested in being a COH supporter can go to http://www.cityofhope.org and learn 
more about the incredible job they are doing with cancer research and treatments.
 
Again, Thank you for your care, prayers, and donations. God Bless.
Howard
 
On February 13, 2002,
Howard was diagnosed with Acute Myeloid Leukemia. He is beginning his treatment 
now. We are asking all family, friends and fans to please keep him in your prayers.
 
March 1, 2002:
Howard is doing pretty well. He has gone through his first round of chemotherapy. 
Again, the doctors are amazed that he is doing so well, but say it is because his body 
is in such good shape. In a couple of weeks he will be moved to The City of Hope 
where he will have a harder round of chemotherapy followed by a stem cell transplant.
He will be there for 6-8 weeks.
 
March 9, 2002:
Today Howard was released from Tarzana Hospital for two weeks. His blood count 
has reached a peek that the doctors were comfortable with. After his rest at home he 
will be continuing his treatment at The City of Hope.
 
March 27, 2002:
Howard entered The City of Hope.
 
March 28, 2002:
Howard has started his second round of chemotherapy. He is in good spirits.
 
April 13, 2002:
 
At this time Howard's count is down to what they call "zero.” They will be bringing his 
count back up to start collecting his stem cells. This is a three to five-day process. 
They will then freeze and store them. Howard will then have another round of 
chemotherapy and also radiation. The retrieved stem cell will then be administered to 
Howard.Howard's spirits are still high. The doctors are still amazed. He has not felt the 
sickness or discomfort with the last round of chemotherapy that he did with the first. 
The doctors have also let Howard use the treadmill for 30 minutes a day.
 
May 7, 2002:
 
Howard has been waiting patiently for his blood count to rise. Today it has come up to 
400. We have said many prayers for him and we believe we have been heard. Now that 
it is rising he will be able to have the stem cells collected soon.
 
May 22, 2002:
 
Howard is out of the City of Hope for a short time, although he is traveling there 
everyday for treatment. The doctors have not been able to collect the stem cells they 
had hoped for. The doctors will wait to see if his stem cells will multiply naturally. The 
stem cells at this time are not as healthy. Howard is still in good spirits and is taking one 
day at a time.
 
June 18, 2002:
 
Howard has been out of the City of Hope for a couple of weeks. He has been resting 
and waiting for the stem cells to develop. Yesterday he entered the hospital again and 
they have harvested 1,100,000 stem cells! If it keeps up there will be enough stem 
cells in three to five days. Howard is very happy with this news.
 
June 25, 2002:
GOOD NEWS! Howard has had all of the stem cells harvested that will be needed for 
his treatment. Howard will be resting at home until he enters the City of Hope again 
on July 12th. Happy Birthday Howard!!
 
HOWARD WOULD LIKE TO THANK EVERYONE FOR THEIR BIRTHDAY CARDS,
BIRTHDAY EMAILS, AND GOOD WISHES. ''THANK YOU! ''
 
July 12, 2002: Howard has entered the City of Hope . During this time Howard will 
have the final chemotherapy treatments along with radiation. This will be hard on 
Howard and his stay will be approximately two months. Your prayers are needed. We 
want to add at this time that Howard has had a friend Sharon that has stayed by his side 
during all of this. We commend her for the giving of her time and love. We would like to 
thank her family for sharing her with us.
Thank you Sharon 
 
July 25, 2002:
Howard received his stem cells on July 22. His blood count is still dropping and he is 
not feeling as well as he has been. The next couple of weeks will be hard for him, but 
he is in good hands at the City of Hope . We would like to mention that Howard was 
given a special award at the UFAF Convention in Las Vegas this last weekend, 
accepted by his oldest son, Howard Jackson Jr.
 
P.S. Please don't forget your prayers for Howard.
 
August 4, 2002:
Howard has had problems with his mouth and throat. It has made it hard for him to talk; 
however he has still tried to keep in contact with other people. The good news is that 
his blood count is rising. His condition should improve as he gets his strength back. 
Howard also, has been moved to a different room for any one that would like to send 
him a card.
 
August 16, 2002:
Today Howard has been released from the City of Hope . He will be resting at home 
and must return to the hospital twice a week for treatment. He is feeling stronger every 
day. Thank you for all the support you have given Howard during this time.
 
September 1, 2002:
Howard entered the City of Hope again today. He was running a temperature of 104.
 
September 4. 2002:
Please pray for Howard. He has a blood infection, but the doctors feel they have it 
under control. He is hoping to be home soon.
 
September 18, 2002:
Howard did come home for a few days but is back in this week having another 
chemotherapy treatment. He is hoping to come home on Friday. The blood infection 
seems to be under control at this time. Howard is taking one day at a time knowing that 
he is near the end of his treatment. He still needs your prayers and support.
 
September 25, 2002:
Howard is still in the City of Hope . His blood infection has come back and he also 
has pneumonia. Something positive, he did have his chemotherapy port removed two 
days ago. We will keep you posted. He is still trying to keep a very positive attitude 
nearing the end of his treatment.
 
October 5, 2002:
Howard has been home from the hospital since Monday. He will be having routine visits 
at the hospital. It will take a little time for him to get part of his strength back, but he will. 
We are encouraging him to eat lots of good food with lots of calories!
 
October 27, 2002:
Howard is gaining some weight and is working out a little. Over doing it, is not a good 
idea right now. For the most part he is feeling better.
 
November 6, 2002: GOOD NEWS! A bone marrow test taken shows Howard is free of 
cancer. His spirits are high and he is working out every other day. He is still taking it 
easy and staying away from crowds.
 
December 9, 2002: Howard is feeling much better. His blood count is starting to come 
up and he is getting that old smile back on his face. He will have to have some surgery 
in January because of damage to his sinus caused by the radiation. He has gone home 
to Detroit for the Christmas holiday to be with family. Howard wishes you all a very 
happy holiday and thanks you for your concern and prayers that has given him the 
greatest gift of all, life.
 
January 18, 2003: Howard had surgery on his sinus problem last Thursday morning. He 
is doing well and hopefully it will relieve the problem he was having, caused from the 
damage of the radiation. Howard hopes to return to work soon. That will be great! We 
miss you Howard.
 
April 14, 2003: Howard has returned to work. He is feeling much better, but not 
overdoing yet. He will start working regularly soon.
 
August 1, 2003: Howard has been back to work for some time now. In his last bone 
marrow tests he came through with flying colors. Howard is in complete remission. 
Howard received a standing ovation at the UFAF convention in Las Vegas July 19th. 
He has also been recognized for all his life long accomplishments. Howard is working 
toward setting up seminar schedules to co-inside with his busy schedule.
 
 
He would like to gratefully acknowledge his appreciation to all who have sent cards and
messages of encouragement.
 
Howard has a very positive attitude. He has kept his body physically sound which will 
be an asset for his recovery.
 
Howard loves life and people to the fullest extent possible. Please return his love in 
your prayers.
 
Thank you.
 
You can visit Howard's web site www.howardjackson.net
Howard's Email: howardjackson@worldblackbelt.com